Sociologický časopis / Czech Sociological Review 2019, 55(5): 587-614 | DOI: 10.13060/00380288.2019.55.5.478

The Dis/ability Coordinates of the Critical Gesture and Matters of Care

Michal Synek, Dana Hradcová, Radek Carboch, Dita Jahodová
Fakulta humanitních studií, Univerzita Karlova, Praha

Critique is one of the social sciences' most respectable tasks, especially when its aim is to emancipate people oppressed for their otherness. However, there is also a critique of critique as a disabling tool, replacing the obvious actors revealed as 'fictitious' with synthetic objects that the critic herself deems more 'factual'. This article understands the critical gesture as a pragmatic resource for re-organising the field of dis/abilities. In the first part of the article, we make three critical gestures together with José, a person identified as mentally ill. A paranoid vision of a secret conspiracy, a naturalising concept of disease, and the critique of stigma all seek to radically redraw the dis/ability coordinates, but their emancipatory potential is thwarted by the complex interconnectedness of their objects. José's recovery thus ultimately hinges on a delicate balancing act combining critique and composing. In this sense, his effort resembles the careful treading of lay and professional critics in the last part of our text, in which we try to solve problems of living with dementia together with the Hanuš family. While the critical gesture has an essential role to play here as well, close ethnographic encounters are rather about jointly articulating the critical matters of care, wherein the problematic agencies of both obvious and not-so-obvious actors are acknowledged.

Keywords: critical gesture, dis/ability, impairment, stigma, care

Published: October 1, 2019Show citation

ACS AIP APA ASA Harvard Chicago IEEE ISO690 MLA NLM Turabian Vancouver
Synek, M., Hradcová, D., Carboch, R., & Jahodová, D. (2019). The Dis/ability Coordinates of the Critical Gesture and Matters of Care. Sociologický časopis / Czech Sociological Review55(5), 587-614. doi: 10.13060/00380288.2019.55.5.478.
Download citation

References

  1. Anthony, W. A., L. Ashcraft. 2010. "The Recovery Movement." Pp. 465-479 in B. Lubotsky Levin, K. D. Hennessy, J. Petrila (eds.). Mental Health Services: A Public Health Perspective. Oxford: Oxford University Press.
  2. Austin, J. L. 1962. How to Do Things with Words. Oxford: Oxford University Press.
  3. Ben-Moshe, L. 2013. "Disabling Incarceration: Connecting Disability to Divergent Confinements in the USA." Critical Sociology 39 (3): 385-403, https://doi.org/10.1177/0896920511430864. Go to original source...
  4. Bérubé, M. 2010. "Equality, Freedom, and/or Justice for All: A Response to Martha Nussbaum." Pp. 97-109 in E. Feder Kittay, L. Carlson (eds.). Cognitive Disability and Its Challenge to Moral Philosophy. Chichester, Malden: Wiley-Blackwell. Go to original source...
  5. Boltanski, L. 2011. On Critique: A Sociology of Emancipation. Cambridge, UK, Malden, MA: Polity Press.
  6. Brown, L. C. 2013. "Stigma: An Enigma Demystified." Pp. 147-160 in L. J. Davis (ed.). The Disabilities Studies Reader. 4th ed. New York, London: Routledge.
  7. Coates, T.-N. 2017. "Foreword." Pp. vii-xvii in T. Morison. The Origin of Others. Cambridge, MA, London: Harvard University Press.
  8. Dempster, B. 1998. Self-organizing Systems Perspective on Planning for Sustainability. Nepublikovaná diplomová práce. Waterloo: University of Waterloo.
  9. Carlson, L., E. F. Kittay. 2010. "Introduction: Rethinking Philosophical Presumptions in Light of Cognitive Disability." Pp. 1-25 in E. Feder Kittay, L. Carlson (eds.). Cognitive Disability and Its Challenge to Moral Philosophy. Malden, Oxford, Chichester: WileyBlackwell, https://doi.org/10.1002/9781444322781.ch1. Go to original source...
  10. Foucault, M. 2007. "What is Critique?" Pp. 41-81 in M. Foucault. The Politics of Truth. Los Angeles: Semiotext(e).
  11. Garfinkel, H. 1967. Studies in Ethnomethodology. Englewood Cliffs, N.J.: Prentice-Hall.
  12. Garland-Thomson, R. 2009. Starring: How We Look. New York: Oxford University Press.
  13. Garland-Thomson, R. 2012. "Začlenění kritické analýzy ne/způsobilosti jako cesta k proměně feministické teorie." Pp. 356-405 in K. Kolářová (ed.). Jinakost - postižení - kritika: Společenské konstrukty nezpůsobilosti a hendikepu. Praha: Sociologické nakladatelství (SLON).
  14. Gashé, R. 2007. The Honor of Thinking: Critique, Theory, Philosophy. Stanford, CA: Stanford University Press.
  15. Goffman, E. 1963. Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, N.J.: Prentice-Hall, Inc.
  16. Goodley, D. 2000. Self-advocacy in the Lives of People with Learning Difficulties: The Politics of Resilience. Maidenhead, UK: Open University Press.
  17. Goodley, D. 2001. "'Learning Difficulties', the Social Model of Disability and Impairment: Challenging Epistemologies." Disability & Society 16 (2): 207-231. https://doi.org/10.1080/09687590120035816. Go to original source...
  18. Haraway, D. 1991a. "A Cyborg Manifesto: Science, Technology, and Socialist-Feminism in the Late Twentieth Century." Pp. 149-181 in D. Haraway. Simians, Cyborgs, and Women: The Reinvention of Nature. London: Free Association Press.
  19. Haraway, D. 1991b. "Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective." Pp. 183-201 in D. Haraway. Simians, cyborgs, and women: The reinvention of nature. London: Free Association Press.
  20. Haraway. D. 2016. Staying with the Trouble: Making Kin in the Chthulucene. Durham, London: Duke University Press, https://doi.org/10.1215/9780822373780. Go to original source...
  21. Kim, J. B. 2017. "Toward a Crip-of-Color Critique: Thinking with Minich's 'Enabling Whom?'" Lateral 6 (1), https://doi.org/10.25158/L6.1.14. Go to original source...
  22. Kittay, E. F. 2001. "When Caring Is Just and Justice Is Caring: Justice and Mental Retardation." Public Culture 13 (3): 557-580, https://doi.org/10.1215/08992363-13-3-557. Go to original source...
  23. Kittay, E. 2005. "Equality, Dignity and Disability." Pp. 95-122 in M. A. Waldron, F. Lyons (eds.). Perspectives on Equality: The Second Seamus Heaney Lectures. Dublin: Liffey.
  24. Kolářová, K. 2012. "Tělesná jinakost, ne/způsobilost, 'postižení', hendikep… K politice překladu a teoretickému vymezení pojmů." Pp. 41-63 in K. Kolářová (ed.). Jinakost - postižení - kritika: Společenské konstrukty nezpůsobilosti a hendikepu. Praha: Sociologické nakladatelství (SLON).
  25. Latour, B. 2004. "Why has Critique Run out of Steam? From Matters of Fact to Matters of Concern." Critical Inquiry 30 (2): 225-248, https://doi.org/10.1086/421123. Go to original source...
  26. Latour, B. 2005. Reassembling the Social: An Introduction to Actor-Network-Theory. Oxford: Oxford University Press.
  27. Latour, B. 2010a. "An Attempt at Writing a Compositionist Manifesto." New Literary History 41 (3): 471-490.
  28. Latour, B. 2010b. On the Modern Cult of the Factish Gods. Durham, London: Duke University Press.
  29. Latour, B. 2013. An Inquiry into Modes of Existence: An Anthropology of the Moderns. London: Harvard University Press.
  30. Latour, B. 2016. Stopovat a skládat světy s Brunem Latourem: Výbor z textů 1998-2013. Praha: tranzit.cz.
  31. Law, J. 2010. "Care and Killing: Tensions in Veterinary Practice." Pp. 57-71 in A. Mol, I. Moser, J. Pols (eds.). Care in Practice: On Tinkering in Clinics, Homes and Farms. Bielefeld: Transcript.
  32. Levi, S. J. 2006. "Ableism." Pp. 1-4 in D. Mitchel, S. Snyder (eds.). Encyclopedia of Disability. Thousand Oaks, London, New Delhi: Sage Publications.
  33. MacIntyre, A. C. 1999. Dependent Rational Animals: Why Human Beings Need the Virtues. Chicago: Open Court.
  34. M'charek, A., I. van Oorschot. 2020. "What about Race?" Pp. 235-245 in A. Blok, I. Farias, C. Roberts (eds.). Routledge Companion to Actor-Network-Theory. London: Taylor & Francis, https://doi.org/10.4324/9781315111667. Go to original source...
  35. Minich, J. A. 2016. "Enabling Whom? Critical Disability Studies Now." Lateral 5 (1), https://doi.org/10.25158/L5.1.9. Go to original source...
  36. Mol, A. 2002. The Body Multiple: Ontology in Medical Practice. Durham, London: Duke University Press, https://doi.org/10.1215/9780822384151. Go to original source...
  37. Mol, A. 2016. "Clafoutis jako složenina: Když se podaří, že věci drží pohromadě." Biograf [online] (63-64): 113-132. Dostupné z: http://www.biograf.org/clanek.html?clanek=6307.
  38. Morison, T. 2017. The Origin of Others. Cambridge, MA, London: Harvard University Press.
  39. Moser, I., J. Law. 1998. "Přechody snadné, přechody nesnadné aneb o heterogenní ekonomii subjektivity." Biograf [online] (15-16): 70. odst. Dostupné z: http://www.biograf.org/clanek.php?clanek=1502.
  40. Orwell, G. 2015. Devatenáct set osmdesát čtyři. Praha: Argo.
  41. Paleček, J. 2004. "Opakujte po mně: duševní nemoc - říkáte to stejně?!!? O překládání duševní nemoci." Biograf [online] (34): 107 odst. Dostupné z: http://www.biograf.org/clanek.php?clanek=3402.
  42. Puig de la Bellacasa, M. 2017. Matters of Care: Speculative Ethics in More than Human Worlds. Minneapolis: University of Minnesota Press.
  43. Rancière, J. 2004. The Philosopher and His Poor. Durham, London: Duke University Press, https://doi.org/10.1215/9780822385707. Go to original source...
  44. Sacks, H. 1984. "On Doing 'Being Ordinary'." Pp. 413-440 in J. M. Atkinson, J. Heritage (eds.). Structures of Social Action: Studies in Conversation Analysis. Cambridge: Cambridge University Press, https://doi.org/10.1017/CBO9780511665868.024. Go to original source...
  45. Serieux, P., J. Capgras. 1982. "Délire de Revendication." Pp. 102-105 in P. Bercherie (ed.). Présentation des Classiques de la Paranoïa. Paris: Navarin-Seuil.
  46. Sontag, S. 1977. Illness as Metaphor. New York: Farar, Straus and Giroux.
  47. Strathern, M. 1991. Partial Connections. Bollman Place: Rowman & Littlefield Publishers, Inc.
  48. Synek, M., D. Hradcová, D. Jahodová, R. Carboch. 2017. "O (ne)soudržnosti pečování: Mnohočetné ontologie života s demencí." Biograf (65-66): 5-51.
  49. Tarde, G. 2012. Monadology and Sociology. Melbourne: re.press.
  50. Taylor, J. 2010. "On Recognition, Caring, and Dementia." Pp. 27-56 in A. Mol, I. Moser, J. Pols (eds.). Care in Practice: On Tinkering in Clinics, Homes and Farms. Bielefeld: Transcript.
  51. Thompson, N. 2001. Anti-Discriminatory Practice. New York: Palgrave.

This is an open access article distributed under the terms of the Attribution-NonCommercial 4.0 International (CC BY-NC 4.0), which permits use, distribution, and reproduction in any medium, provided the original publication is properly cited. No use, distribution or reproduction is permitted which does not comply with these terms.